SILENT PARTNERS by Rebecca Dresser ( 9780190459277 ) - Books & Audio Books at Pickabook.co.uk

Item Details

Title:

SILENT PARTNERS
HUMAN SUBJECTS AND RESEARCH ETHICS

By:

Format:

Hardback

List price:	£53.00
Our price:	£53.00

ISBN 10:

0190459271

ISBN 13:

9780190459277

Availability:

Not yet published. (You may still order this item, and we will dispatch your order as soon as it becomes available.)

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Currently 0 available

Publisher:

OXFORD UNIVERSITY PRESS INC

Pub. date:

1 November, 2016

Pages:

320

Description:

The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.

Synopsis:

When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know about problems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether they meet ethical and regulatory standards.A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little control over anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real-not just symbolic-partners in research.

Publication:

Imprint:

Oxford University Press Inc

Returns:

Returnable

Some other items by this author:

MALIGNANT (HB)

SILENT PARTNERS (PB)

THE HUMAN USE OF ANIMALS (PB)